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by Tom on July 19th, 2009

Current state of lymph node biopsy: the analysis is “complex” and they’ve sent it to the UW to have more subtyping done. Hopefully I’ll get a call early tomorrow with results and an invitation to come in and start chemo same-day. I really want to try out this neat chest port!

Speaking of chest ports (and surgery to install them), my steri-strips have all come off. Now I just hope I can clean the adhesive off. The areas around a couple of incisions are real sticky!

More motivation: this morning I got a pretty intense pain in my shoulder. It wouldn’t go away unless I found just the right position, and breathing in was not allowed. Shallow, uncomfortable breaths.

I suspect this is a result of my enlarged spleen pressing up against my diaphragm. You see, in our very beginning stages of development, our diaphragms are all located very closely to our shoulders. They get linked into the sane nerve networks. Then, as we grow older, our bodies stretch and our diaphragms move further down our bodies. But the wiring still has them connected with the shoulders.

The pain from this morning eventually went away. We went to a movie, then to a friend’s BBQ. While at the BBQ the pain returned with significant vengeance! Such a buzzkill. And it is still making itself known right! Two percocet have been sent to die for their dear leader.

I am really looking forward to the start of treatment; the spleen returning to normal size, the night sweats going away, less (yaaaaawn) fatigue.

I know it’ll be like running a marathon. A six-month-long, poisonous marathon. But I’m still excited to hear the starting pistol, and to turn the first corner.

Bring on the chemo.

From → Diagnostic Phase

  1. Heather McCall permalink

    Tom, you are awesome! Thanks for sharing your journey and good luck. I will tune in for your updates. Much love from Heather, Arthur and India.

  2. Any chance they used some type of gas to make it easier to insert the port during surgery? For laparoscopic surgery (when they blow your abdomen up and go through your belly button) the #1 side effect is painful shoulders, because the gas rises and bubbles form in your shoulders. And it hurts. I hope it is somehow that (which goes away) and not your spleen pushing your internal organs around, or I’m going to have to give your spleen a talking to.

  3. Tom permalink

    Interesting bit about the shoulders! There was a chance that they’d remove my spleen laparoscopically, but we hadn’t got so far as to discuss side-effects.

    I don’t think they used a gas for the port installation. I took another look at the care manual that they gave me in my discharge packet. This manual includes complete instructions for installing the port, which I think is awesome. Didn’t see a mention of gas though.

    The medical folks all seemed to think that it was pain referred from the diaphragm. Since the pain showed up with abdominal movement (even when my shoulders were unmoved), I am inclined to believe them.

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