Friday, January 8th, 2010
Hey there, long time no see! The last month has been a roller-coaster, full of ups and downs. In that order.
This is going to be really long. Check with your stomach first: is it growling? Grab a snack before starting to read. I care about your comfort!
At the beginning of December we did a bunch [...]
Filed in Diagnostic Phase
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Also tagged antibiotics, bells palsy, cat scan, cerebrospinal fluid, charing cross hospital, chelsea and westminster hospital, codeine, complete remission, ct scan, cytarabine, depocyt, dexamethasone, dilaudid, diplopia, disphagia, dr feldman, dr norman, dr taylor, ear infection, fentanyl patch, group health, guys and st thomas hospital, heathrow airport, heparin, hospital hotel dieu, lumbar puncture, methotrexate, mri, myasthenia gravis, neurological symptoms, pain, permanent remission, pet scan, ptosis, victory lap, virginia mason
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Sunday, November 22nd, 2009
The victory of the stem cell collection marked the end of needing to give myself the Neupogen shots each night, which is nice. But since then I’ve been dealing with a really annoying headache. Actually the headaches started during the week just before the collection; splitting headaches that couldn’t be extinguished laying down.
I tried taking [...]
Filed in Treatment Phase
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Also tagged apheresis, dexamethasone, dilaudid, dr norman, filgrastim, glucosteroid, headache, hearing loss, methotrexate, neupogen, pain, percocet, tinnitus
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Wednesday, November 11th, 2009
I got a call earlier today from Dr Norman’s office saying that the third round of flow cytometry (the first since intrathecal treatment started) came back negative.
Dr Norman sounds convinced that the negative result is the one to run with; in his opinion we can stop the intrathecal therapy and stamp treatment as complete!
It feels [...]
Monday, November 9th, 2009
Continuing the story from last time, I was giving myself shots every night to build up my blood counts for the autologous stem cell transplant. I went to the SCCA and they gave my beefy veins the thumbs-up; I wouldn’t need an additional vein catheter to make this happen.
Bring on the bone pain, bring on [...]
Thursday, September 3rd, 2009
Last Friday I had another CT scan. We wanted to see the effects of two rounds worth of chemotherapeutic bombardment, and we were not disappointed!
Lymph nodes all over my body that were enlarged and opaque had returned to normal-sized translucency. My spleen has shrunk from enlarged-size to much closer to normal. Observe!
Spleen as seen in [...]