Thursday, February 25th, 2010
And as the first three methotrexate treatments went, so did the fourth. Once more I checked into the hospital on a Monday and then checked out on Thursday.
This time I wanted to do everything I could to avoid suffering through the joint pain on Saturday morning. My lizard brain considered trying to stay in the [...]
Filed in Treatment Phase
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Also tagged autologous stem cell transplant, bone marrow, central nervous system, conditioning, high-dose methotrexate, legs, lizard brain, methotrexate, scca, stem cell collection, stem cells
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Sunday, January 24th, 2010
The Friday after my first high-dose methotrexate was New Years Eve. We partied with some friends in Wallingford, and then the group walked to Gasworks Park to watch the fireworks at the Space Needle. My legs were absolutely exhausted by the walk to and back. They were not happy at all. The next morning the [...]
Filed in Treatment Phase
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Also tagged arthralgia, autologous stem cell transplant, depocyt, dexamethasone, dr norman, intrathecal, legs, methotrexate, mri, percocet, scca
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Friday, January 8th, 2010
Hey there, long time no see! The last month has been a roller-coaster, full of ups and downs. In that order.
This is going to be really long. Check with your stomach first: is it growling? Grab a snack before starting to read. I care about your comfort!
At the beginning of December we did a bunch [...]
Filed in Diagnostic Phase
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Also tagged antibiotics, bells palsy, cat scan, cerebrospinal fluid, charing cross hospital, chelsea and westminster hospital, codeine, complete remission, ct scan, cytarabine, depocyt, dexamethasone, dilaudid, diplopia, disphagia, dr feldman, dr norman, dr taylor, ear infection, fentanyl patch, group health, guys and st thomas hospital, heathrow airport, heparin, hospital hotel dieu, intrathecal chemotherapy, lumbar puncture, methotrexate, mri, myasthenia gravis, neurological symptoms, permanent remission, pet scan, ptosis, victory lap, virginia mason
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Saturday, November 28th, 2009
On Tuesday I wrote to Dr Norman to describe the litany of symptoms that have been ailing me for the last few weeks; that evening he responded that he would have some extra time Wednesday morning before his first patient, and that I should come by to see him.
His suspicion was that my correlating digestive [...]
Sunday, November 22nd, 2009
The victory of the stem cell collection marked the end of needing to give myself the Neupogen shots each night, which is nice. But since then I’ve been dealing with a really annoying headache. Actually the headaches started during the week just before the collection; splitting headaches that couldn’t be extinguished laying down.
I tried taking [...]
Filed in Treatment Phase
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Also tagged apheresis, dexamethasone, dilaudid, dr norman, filgrastim, glucosteroid, headache, hearing loss, intrathecal chemotherapy, methotrexate, neupogen, percocet, tinnitus
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Thursday, October 15th, 2009
It has been a crazy last two days. Crazy in the sense that they were more than expected.
First, we got some good news: the CT scan after my fourth round was mostly unchanged from after my second round, so we’re calling this a “complete response after two cycles” and that the disease has remained stable [...]
Filed in Treatment Phase
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Also tagged anxiety, apheresis, autologous stem cell transplant, bells palsy, bone pain, cat scan, cerebrospinal fluid, chemotherapy, colony stimulating factor, complete response, dr norman, filgrastim, lumbar puncture, mri, neupogen, seattle cancer care alliance, stable disease, stem cells
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I went in for my bone marrow biopsy today during lunchtime. First Dr Norman used a local anesthetic to dull all of the nerves that he could.
Then there was a bunch of stuff that would sound gruesome if I wrote it out; he took a little bit of bone marrow, a little bit of bone, [...]