It has been a crazy last two days. Crazy in the sense that they were more than expected.
First, we got some good news: the CT scan after my fourth round was mostly unchanged from after my second round, so we’re calling this a “complete response after two cycles” and that the disease has remained stable …
October 15, 2009 – 10:23 pm
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By Tom
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Posted in Treatment Phase
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Tagged anxiety, apheresis, autologous stem cell transplant, bells palsy, bone pain, cat scan, cerebrospinal fluid, chemotherapy, colony stimulating factor, complete response, dr norman, filgrastim, lumbar puncture, mri, neupogen, pain, seattle cancer care alliance, stable disease, stem cells
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Learned of possible information-having lymph nodes in my neck
Met awesome folks with great advice at the Lymphoma Networking Group
Got the ball rolling with SCCA second-opinion scheduling
Requested that Group Health send my records to SCCA
Scheduled MUGA scan for next Tuesday
Scheduled surgical consultation for Friday, and surgery for Monday
And now I go to the dentist, where I …
After the meeting with Dr Norman, we headed to our first meeting of the Seattle Cancer Lifeline’s Lymphoma Networking Group. It was so very worth it.
We had a lot of questions that would be difficult for the doctor to answer. Questions that make people who’ve already been through this ideal resources.
We picked up some food …
We met in-person with Dr Norman to look at the slides from the PET scan that pointed out the neck lymph nodes. He was able to flip through the images to rotate my body lengthwise, giving us a view of the neck. It was really neat to see.
He warned us that the lymph node may …
July 6, 2009 – 4:41 pm
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By Tom
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Posted in Diagnostic Phase
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Tagged adriamycin, chemotherapy, chop, diffuse large b-cell lymphoma, dlbcl, dr norman, group health cooperative, lpl, lymph nodes, lymphoplamacytic lymphoma, muga, permanent remission, pet scan, r-chop, rituximab, seattle cancer care alliance, second opinion
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