You know what they don’t include in disaster movies? The rebuilding. The town gets destroyed by a giant monster, the heroes stop the monster, movie ends.
They never show the months of suffering that the family-owned convenience store goes through as they rebuild. Those kids who have a crater where a park used to live.
The TBI …
This seems an odd title to use as I continue this controlled-descent to my near-death. Let us not forget:
We are essentially flooding the entire Earth, save for Madagascar, and then repopulating Madagascar with a bunch of people we’re pretty sure aren’t cancer.
I got word this morning that my white blood cell count is under 100, …
Did I mention the light-headedness? For the last month there have been occasional episodes where I’ll stand from a sitting position, and after thirty-seconds find myself light-headed and dizzy. The sensation would last for up to a minute or two, and was really quite debilitating in the wrong moment.
We were pretty sure they weren’t hydration-related, …
March 18, 2010 – 7:08 pm
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By Tom
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Posted in Treatment Phase
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Tagged dehydration, dizziness, exhaustion, hospital, inpatient, light-headed, medications, napping, scca, tbi, total-body irradiation, uwmc, vorpal sword
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I’ve made a bit of progress on my dilemma on whether or not to go for the cranial/spinal radiation boost. This morning I ran across a study that ends like this:
“CONCLUSION: Primary chemotherapy based on high-dose MTX and ARA-C is highly efficient in PCNSL. Response rate and response duration in this series are comparable to …
We’re getting closer and closer to starting the stem-cell transplant conditioning. Last week we did an LP and an MRI to make sure my CSF was A-OK. Tests were negative, which is a positive sign.
March 7, 2010 – 8:02 pm
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By Tom
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Posted in Treatment Phase
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Tagged autologous stem cell transplant, cerebrospinal fluid, conditioning, cranial radiation, csf, cyclophosphamide, cytoxan, dr chamberlain, dr kane, dr taylor, etoposide, lumbar puncture, methotrexate, microscopic disease, mri, neuro-oncologist, palifermin, tbi, total-body irradiation
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